Summary Data Dashboard

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The following dashboard of publicly-available, aggregate data provides a quick overview of available AMP PD data. This dashboard represents core data characteristics associated with: participant demographics, distributions for cohort and participant data, and collected data types (clinical, whole genome, and transcriptomics).

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Data as of:

December 5, 2022

Projected Next Data Release:

May 31, 2023

Total Participants

	Total
biofind	213
hbs	1173
lbd	4579
lcc	599
pdbp	1604
ppmi	1943
sure-pd	259
steady-pd	329

Total Case vs Control Participants

	Total PD Case Participants	Total Control Participants	Total Other Diagnosis
biofind	118	89	6
hbs	639	531	3
lbd	0	1965	2614
lcc	241	358	0
pdbp	892	552	160
ppmi	1006	824	113
sure-pd	259	0	0
steady-pd3	329	0	0

Biological Sex Within Cohort

	Male	Female
biofind	121	92
hbs	593	580
lbd	2651	1928
lcc	265	334
pdbp	893	711
ppmi	1041	902
sure-pd	132	127
steady-pd3	229	100

Most Common Participant Diagnoses

Most Common Diagnoses

	Essential Tremor	Idiopathic PD	Multiple System Atrophy	No PD Nor Other Neurological Disorder	Parkinson's Disease	Progressive Supranuclear Palsy	Other Neurological Disorder(s)	Possible Alzheimer's Disease	LBD	Dementia With Lewy Bodies	Corticobasal Degeneration	Parkinsonism	Fahr's Syndrome	Vascular Parkinsonism	Olivopontocerebellar Atrophy	Prodromal motor PD	Prodromal non-motor PD	Alzheimer's Disease	Juvenile Autosomal Recessive Parkinsonism	Neuroleptic-Induced Parkinsonism	Psychogenic Illness
biofind	2	118	0	89	0	0	4	0	0	0	0	0	0	0	0	0	0	0	0	0	0
hbs	0	0	0	531	639	0	0	3	0	0	0	0	0	0	0	0	0	0	0	0	0
lbd	0	0	0	1965	0	0	0	0	2614	0	0	0	0	0	0	0	0	0	0	0	0
lcc	0	0	0	357	242	0	0	0	0	0	0	0	0	0	0	0	0	0	0	0	0
pdbp	26	0	61	551	884	61	0	0	0	9	6	3	1	1	1	0	0	0	0	0	0
ppmi	19	1016	9	788	0	0	26	0	0	5	1	0	0	1	0	36	36	1	1	3	1
sure-pd	0	0	0	0	259	0	0	0	0	0	0	0	0	0	0	0	0	0	0	0	0
steady-pd3	0	0	0	0	328	0	0	0	0	0	1	0	0	0	0	0	0	0	0	0	0

Participant Race Distribution

	White/ Caucasian	Asian	Black/ African American	Multi-racial	Native Hawaiian/ Pacific Islander	Unknown/Other	American Indian/ Alaska Native	Arab	Other
biofind	193	1	10	3	1	4	0	0	1
hbs	1111	10	31	3	14	4	0	0	0
lbd	4579	0	0	0	0	0	0	0	0
lcc	572	3	2	0	0	18	0	2	0
pdbp	1506	16	55	7	0	18	2	0	0
ppmi	1802	13	20	74	1	13	2	0	18
sure-pd	252	1	2	2	0	0	0	0	2
steady-pd3	306	4	9	5	1	3	1	0

Participant Age Distribution

	10-19	20-29	30-39	40-49	50-59	60-69	70-79	80-89	90+
biofind	0	0	0	0	33	105	65	10	0
hbs	0	2	5	49	195	423	376	121	2
lbd	1	7	19	74	353	812	1532	1373	408
lcc	2	20	44	86	119	161	118	48	1
pdbp	0	6	22	105	361	634	408	65	3
ppmi	1	15	92	198	468	704	391	72	2
sure-pd	0	0	3	22	66	103	62	3	0
steady-pd3	0	0	6	24	77	157	61	4	0

Whole Genome Sequencing in Blood

^{(+) = with mutation; (-) = without mutation}

Whole Genome Sequencing in Blood

	PD with Known Mutations	PD with No Known Mutations	Healty Control with Known Mutations	Healty Control with No Known Mutations	Other Diagnosis with PD	Other Diagnosis no PD
biofind	24	75	48	22	1	2
hbs	435	204	385	146	0	3
lbd	0	0	541	1424	1367	1247
lcc	181	61	203	154	0	0
pdbp	278	573	145	355	38	111
ppmi	591	350	558	172	83	53
sure-pd	90	169	0	0	0	0
steady-pd3	101	227	0	0	1	0

RNA Sequencing in Blood

Proteomics in Plasma and CSF

Dashboard Footnotes

Total Case vs. Control Participants Chart:

Total PD Case Participants - quantity is derived from the Enrollment assessment and [study_arm] variable and includes the following values: PD; Genetic Registry PD; Prodromal; and SWEDD
Total Control Participants - quantity is derived from the Enrollment assessment and [study_arm] variable and includes the following values: Genetic Registry Unaffected; Healthy Control; and Disease Control

Parkinson's or Related Disorder Chart:

Other category consolidates diagnoses with 10 or less participants. The following diagnoses fall into this category:

Alzheimer's Disease
Corticobasal Degeneration
Hemiparkinson/Hemiatrophy Syndrome

Neuroleptic-Induced Parkinsonism
Parkinsonism
Possible Alzheimer's Disease

Psychogenic Illness
Unknown
Vascular Parkinsonism

Prodromal motor PD - represents at least one motor symptom to meet eligibility for enrollment in PPMI as PD subject
Prodromal non-motor PD - represents at least one non-motor symptom and no motor symptoms

Participant Race Distribution:

White/Caucasian category consolidates race values for (1) White and (2) Caucasian (e.g., British Isles, Germany, Peninsular Spain, Latin America, France, Italy, Ireland, Sweden, etc.)
Black/African-American category consolidates race values for (1) Black or African American and (2) American - Black (i.e., people of African descent whose area of origin is within the Americas: e.g., Canada, Caribbean, Brazil, US, etc.)

Whole Genome Sequencing Data - Known mutations

GBA: N370S (rs76763715); T369M (rs75548401); E326K (rs2230288)
LRRK2: G2019S (rs34637584); R1441G_T (rs33939927); R1441G_G (rs33939927)
SNCA: A53T (rs104893877); G51D (rs431905511); E46K (rs104893875); A30P (rs104893878)