Website and Privacy Policies

The AMP PD partnership aims to protect personal information received in connection with the AMP PD website from casual visitors and registered users. To setup an account in the AMP PD Knowledge Platform, you will need to provide personal information that may include your name, email, and other information that identifies you personally. We do not require you to register to visit the AMP PD website. However, access to data through the AMP PD Knowledge Platform will be granted only to registered users and will be governed by the AMP PD Data Use Agreement(DUA) . By visiting the AMP PD website or registering for the AMP PD Knowledge Platform, you agree to the following privacy policies that enable your information to be shared as described here.

The AMP PD program uses web measurement and customization technologies to help our website function better for visitors and to better understand how the public uses the online resources we provide.
We collect only the following information:

• the domain name from which you access the Internet
• the date and time you access the AMP PD website
• the Internet address of the website from which you direct-linked to the AMP PD website
• the pages and services you accessed and other service usage patterns.

To further understand usage and make continuous improvements to the website, the AMP PD website uses the Google Analytics tools offered by Google, LLC to capture insights, traffic patterns/trends, and proactively monitor site performance. Google Analytics gathers information automatically and continuously. Under the Google Analytics Terms of Service, no Personally Identifiable Information (PII) is collected. Additionally, Sapient (a contractor to the U.S. Government supporting the AMP PD program) participates in the U.S. federal government’s Digital Analytics Program (DAP), in which Google Analytics data are collected from websites across the federal government.

This information is used to measure the number of visitors to the various sections of the website and to help us make the website more useful to visitors. The AMP PD program will retain data collected long enough to achieve the specified objective for which they were collected. Unless it is specifically stated otherwise, no additional information will be collected about you. We may also use cookies only for internal tracking and for providing a better customer experience, as described below.

The AMP PD program never collects information for commercial marketing or any purpose unrelated to the AMP PD program mission and goals.

Except as set forth in this Privacy Statement or as required by law, we will not disclose, sell, rent, share, trade or give away any of your personal information. We may share personal information about you with third parties when we engage them to perform services on our behalf, including maintenance services, hosting, data storage, security, and analytics.  We will disclose information about individual users to governmental or judicial authorities, law enforcement agencies, or other individuals or entities when required to do so in response to subpoenas, court orders, or other legal processes.  Finally, we may share information to investigate, prevent, or take action regarding suspected illegal activities or fraud, or to enforce this Privacy Statement and other terms and conditions published on the website.

The Office of Management and Budget Memo M-10-22, Guidance for Online Use of Web Measurement and Customization Technologies allows federal agencies to use session and persistent cookies.
When you visit any website, its server may generate a piece of text known as a "cookie" to place on your computer. The cookie allows the server to "remember" specific information about your visit while you are connected.

The cookie makes it easier for you to use the dynamic features of webpages. Cookies from AMP PD webpages only collect information about your browser’s visit to the site; they do not collect personal information about you. We do not use cookies to retrieve information that is unrelated to the AMP PD website or its content.

There are two types of cookies, single session (temporary) and multi-session (persistent). Session cookies last only as long as your web browser is open. Once you close your browser, the cookie disappears. Persistent cookies are stored on your computer for longer periods.

Session Cookies: We use session cookies for technical purposes such as to enable better navigation through our site. These cookies let our server know that you are continuing a visit to our site.

Persistent Cookies: We use persistent cookies to enable web analytics to differentiate between new and returning visitors. Persistent cookies remain on your computer between visits to our site until they expire.

If you do not wish to have session or persistent cookies placed on your computer, you can disable them using your web browser. If you opt out of cookies, you will still have access to all information and resources on amp-pd.org. Please note that by following the instructions to opt-out of cookies, you will disable cookies from all sources, not just those from amp-pd.org.

When inquiries are e-mailed to us, we store the question and the e-mail address so that we can respond electronically. By sending us an electronic mail message, you may be sending us personal information (e.g., name, address, e-mail address), that could become subject to an official Freedom of Information Act request. We will store your name and e-mail address in order to respond to your request or to otherwise resolve the subject matter of your e-mail. Unless otherwise required by statute, we do not identify publicly who sends questions or comments to our website.

As the AMP PD website is updated, portions of this Privacy Statement may be impacted and need to be updated. Any changes will be effective immediately upon the posting of the revised Privacy Statement. Continued use of the website after any such changes constitutes your consent to such changes. The AMP PD program encourages all site visitors to review this page periodically for the latest information on our privacy practices. 

The AMP PD website is fully compliant with the National Institutes of Health Office of the Chief Information Officer (OCIO) IT Governance and Policy. 

The AMP PD program works hard to prevent unauthorized accessing, alteration, disclosure, or destruction of the information we hold and publish to the website. We have many data security safeguards in place, employ software programs to monitor traffic to identify unauthorized attempts to upload or change information or otherwise cause damage to the website, and we regularly review our security practices to proactively guard against unauthorized access. Further, information published to the website for public consumption is reviewed by a governing body to ensure information accuracy and integrity are upheld.  It is important to remember, however, that no system can guarantee 100% security at all times.  Accordingly, we cannot assume responsibility or liability for unauthorized access to our servers and systems. 

The AMP PD website is maintained by Sapient, a contractor to the U.S. Government. The website is protected by various provisions of Title 18 of the U.S. Code. Violations of Title 18 are subject to criminal prosecution in federal court. In the event of authorized law enforcement investigations, and pursuant to any required legal process, information from these sources may be used to help identify an individual.

The AMP PD program strives to maintain the security of public and personal information by using appropriate measures designed to protect our website. However, we cannot guarantee the security of any information that is disclosed online. Consequently, we do not insure or warrant the security of any information you transmit, and you do so at your own risk.

Being a public-private partnership, the AMP PD program may share data insights and personal information with companies, organizations or individuals outside of the AMP PD program if we have a good-faith belief that access, use, preservation or disclosure of the information is reasonably necessary, as further described in this Privacy Statement.

The AMP PD program complies with requirements for privacy and security established by the NIH Office of the Chief Information Officer (OCIO). 

By using the AMP PD website and by providing personal information, the AMP PD Access and Compliance Team (ACT) is permitted to reach out to you for the purposes of maintaining and updating your user data records, enforcing AMP PD Knowledge Platform data security, providing assistance for AMP PD Knowledge Platform related questions, or sharing relevant website, program, and cohort updates. The AMP PD ACT may also reach out if you have indicated to the ACT that you are interested in sharing your user experience. 

User data will be made available only to ACT-approved individuals or entities. The data that may be made available include: (i) individual level records with information collected by ACT about volunteered user experience; (ii) aggregate Google analytics data; (iii) any aggregate information volunteered by Terra platform providers; (iv) aggregate information from the AMP PD registration form; and (v) information required to be shared to comply with any applicable legal requirements.  

The ACT monitors public activities on the AMP PD website through periodic audits to assess compliance with the AMP PD governance policies. For example, through these audits, the ACT verifies that public content shared on the AMP PD website is being appropriately shared and acknowledged. The ACT does not actively monitor activities or content placed in Terra private workspaces; however, the ACT may audit private workspaces if it believes data is being improperly shared therein. The ACT supports ethical use of the AMP PD website, including adjudicating suspected unauthorized and/or unethical use of data. The ACT relies on the community of researchers and research participants for vigilance against unauthorized and/or unethical use of the AMP PD website. Additionally, the AMP PD program relies on the community to hold itself to the highest standard of collegial behavior. Users unable or unwilling to meet these standards will have their access to the restricted portions of the AMP PD website revoked. Please contact the ACT (act@amp-pd.org) if you have questions or suggestions about AMP PD website governance, including the policies, ethics, or rules for data sharing through the AMP PD website.

The AMP PD website may contain links to other websites.  We are not responsible for the privacy policies, practices, or content of third-party websites.  The fact that we link to a third-party website is not an endorsement, authorization or representation of our affiliation with that third party, nor is it an endorsement of their privacy or information security policies or practices.  Please refer to each website’s privacy policy to understand their use of information. 

The AMP PD program is based in the United States.  The website is hosted and administrated in the United States or hosted with cloud service providers who are headquartered in the United States.  The website and this Privacy Statement are governed by U.S. law.  If you are located outside the United States, be aware that information you provide to us or that we obtain as a result of your use of the website will be processed in, transferred to and stored in the United States and will be subject to U.S. law.  U.S. privacy and data protection laws may not be as comprehensive as the laws of your country of residence.  By using the website or providing us with your information, you consent to the collection, transfer, storage, and processing of information to and in the United States, and you consent to such activities being governed by U.S. law. 

The AMP PD website is intended for general audiences and is not targeted to children or minors under 18.  We do not knowingly collect personal information from children or minors under the age of 18.  If we learn that we have collected personal information from a child or minor under 18, we will take steps to promptly delete the information.

California Civil Code Section 1798.83 permits website users who are California residents to request certain information regarding disclosures of personal information to third parties for their direct marketing purposes. The AMP PD program does not disclose personal information to third parties for their direct marketing purposes.

If you have any questions about this Privacy Policy, please contact us at act@amp-pd.org.