This repository is under review for potential modification in compliance with Administration directives.
The AMP PD Knowledge Portal was developed to host and share resources related to Parkinson’s disease research and remains fully operational. We continue to maintain and accept Parkinson’s disease and related disorders data and resources throughout this review process.

Participant_ID

Participant ID - Variable Definition Table:

Field Name

Description

Values

Participant ID

AMP PD participant identifier. The form of this identifier is a two letter code indicating the originating study, followed by a dash and then the originating study's participant identifier. 

BF: BioFind

HB: Harvard Biomarker Study

PP: PPMI

PD: PDBP


Tables that Reference this Variable:

  • Demographics
  • Enrollment
  • Epworth Sleepiness Scale
  • Family History
  • MDS-UPDRS
  • MoCA
  • Modified Schwab England ADL
  • Participants
  • PD Medical History
  • PDQ-39
  • REM Sleep Behavior Disorder Questionnaire_Mayo
  • REM Sleep Behavior Disorder Questionnaire_Stiansy-Kolster
  • UPSIT


Data Type Information:

Field Name

Type

Mode

participant_id

String

Required


Curation Notations:

  1. Subject ID in harmonized AMP PD dataset was named participant_id. 
  2. “PATNO” was used as a participant_id in PPMI and BioFIND starting with “prefixes” PP- and BF- respectively (e.g., PP-3400, BF-1006, etc.).
  3. “GUID” was used as a participant_id in PDBP and HBS because there is no other subject ID starting with prefixes PD- and HB- respectively (e.g., PD-PDFK955YBE, HB-PD_INVKT000XM6, etc.).
Query Definition
Demographics.participant_id is not null

Clinical Data Forms Queried (available as a BigQuery Table and csv File)
Demographics

Criteria
participant_id is not null

Query
SELECT left(participant_id, 2) Cohort, count(distinct participant_id) Count from `amp-pd-research.2021_v2_5release_0510.Demographics` WHERE participant_id is not null GROUP BY Cohort ORDER BY Cohort