PDQ-39

PDQ-39 - Assessment Variables:

Field Name	Description	Field Values	Variable Summary
pdq39_01_doing_leisure_activity	PDQ-39-Q1: Had difficulty doing the leisure activities you would like to do?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty with leisure activities scale
pdq39_02_looking_after_home	PDQ-39-Q2: Had difficulty looking after your home, for example, housework, cooking or yardwork?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) -difficulty looking after home scale
pdq39_03_carrying_shopping_bags	PDQ-39-Q3: Had difficulty carrying grocery bags?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty carrying grocery bags scale
pdq39_04_walking_half_mile	PDQ-39-Q4: Had problems walking half a mile?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - problems walking for a half mile scale
pdq39_05_walking_100_yards	PDQ-39-Q5: Had problems walking 100 yards (approximately 1 block)?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - problems walking for one block scale
pdq39_06_getting_around_house	PDQ-39-Q6: Had problems getting around the house as easily as you would like?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) problems getting around the house scale
pdq39_07_getting_around_in_public	PDQ-39-Q7: Had difficulty getting around in public places?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty moving around in public places scale
pdq39_08_need_someone_to_accompany	PDQ-39-Q8: Needed someone else to accompany you when you went out?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - needs someone to accompany outside scale
pdq39_09_worried_about_falling	PDQ-39-Q9: Felt frightened or worried about falling in public?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - worried about falling in public places scale
pdq39_10_confined_to_house	PDQ-39-Q10: Been confined to the house more than you would like?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - confined to house scale
pdq39_11_showering	PDQ-39-Q11: Had difficulty showering and bathing?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty showering and bathing scale
pdq39_12_dressing	PDQ-39-Q12: Had difficulty dressing?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty dressing scale
pdq39_13_buttons_and_shoelaces	PDQ-39-Q13: Had difficulty with buttons or shoelaces?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty with buttons and shoelaces scale
pdq39_14_writing	PDQ-39-Q14: Had problems writing clearly?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty writing clearly scale
pdq39_15_cutting_food	PDQ-39-Q15: Had difficulty cutting up your food?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty cutting food scale
pdq39_16_spill_drink	PDQ-39-Q16: Had difficulty holding a drink without spilling it?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty holding drink without spilling scale
pdq39_17_depressed	PDQ-39-Q17: Felt depressed?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling depressed scale
pdq39_18_lonely	PDQ-39-Q18: Felt isolated and lonely?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling lonely and isolated scale
pdq39_19_weepy	PDQ-39-Q19: Felt weepy or tearful?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling tearful or weepy scale
pdq39_20_angry	PDQ-39-Q20: Felt angry or bitter?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling angry or bitter scale
pdq39_21_anxious	PDQ-39-Q21: Felt anxious?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) feeling anxious scale
pdq39_22_worried_about_future	PDQ-39-Q22: Felt worried about your future?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling worried scale
pdq39_23_hide_pd_from_people	PDQ-39-Q23: Felt you had to hide your Parkinson's from people?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feels need to hide Parkinson's Disease from people scale
pdq39_24_avoid_eat_drink_in_public	PDQ-39-Q24: Avoided situations which involve eating or drinking in public?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - avoiding eating or drinking in public scale
pdq39_25_embarassed_in_public	PDQ-39-Q25: Felt embarrassed in public?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling embarrassed in public scale
pdq39_26_worried_about_reactions	PDQ-39-Q26: Felt worried about other people's reaction to you?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling worried about other's reaction scale
pdq39_27_close_personal_relations	PDQ-39-Q27: Had problems with your close personal relationships?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - problems with personal relationships scale
pdq39_28_support_from_spouse	PDQ-39-Q28: Lacked the support you needed from your spouse or partner?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - lack of support from spouse or partner scale
pdq39_29_support_from_family	PDQ-39-Q29: Lacked the support you needed from your family or close friends?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - lack of support from family or friends scale
pdq39_30_sleep_in_day	PDQ-39-Q30: Unexpectedly fallen asleep during the day?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - unexpectedly falling asleep during the day scale
pdq39_31_problem_with_concentration	PDQ-39-Q31: Had problems with your concentration, for example when reading or watching TV?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - problems with concentration scale
pdq39_32_memory_is_failing	PDQ-39-Q32: Felt your memory was failing?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - memory failing scale
pdq39_33_hallucinations	PDQ-39-Q33: Had distressing dreams or hallucinations?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - distressing dreams or hallucinations scale
pdq39_34_speaking	PDQ-39-Q34: Had difficulty speaking?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - difficulty speaking scale
pdq39_35_unable_to_communicate	PDQ-39-Q35: Felt unable to communicate effectively?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - unable to communicate effectively scale
pdq39_36_felt_ignored	PDQ-39-Q36: Felt ignored by people?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling ignored by people scale
pdq39_37_muscle_cramps	PDQ-39-Q37: Had painful muscle cramps or spasms?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - painful muscle cramps or spasms scale
pdq39_38_joint_pains	PDQ-39-Q38: Had aches and pains in your joints or body?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - aches and pains in joints or body scale
pdq39_39_hot_or_cold	PDQ-39-Q39: Felt uncomfortably hot or cold?	Never Occasionally Sometimes Often Always or cannot do at all	Parkinson's Disease Questionnaire (PDQ-39) - feeling uncomfortably hot or cold scale
pdq39_mobility_score	PDQ-39-Total Score-Mobility	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - mobility total score
pdq39_adl_score	PDQ-39-Total Score-Activities Of Daily Living (ADL)	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - activities of daily living (ADL) total score
pdq39_emotional_score	PDQ-39-Total Score-Emotional Well Being	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) -emotional well being total score
pdq39_stigma_score	PDQ-39-Total Score-Stigma	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - stigma total score
pdq39_social_score	PDQ-39-Total Score-Social Support	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - social support total score
pdq39_cognition_score	PDQ-39-Total Score-Cognitive Impairment (Cognitions)	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - cognitive impairment (cognitions) total score
pdq39_communication_score	PDQ-39-Total Score-Communication	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - communication total score
pdq39_discomfort_score	PDQ-39-Total Score-Bodily Discomfort	Score Summation	Parkinson's Disease Questionnaire (PDQ-39) - bodily discomfort total score

Query Definition

PDQ_39 table contains any cohort participants

Clinical Data Forms Queried (available as a BigQuery Table and csv File)

PDQ_39

Query

SELECT left(participant_id, 2) Cohort, count(distinct participant_id) Count from `amp-pd-research.2021_v2_5release_0510.PDQ_39` GROUP BY Cohort ORDER BY Cohort

PDQ-39

PDQ-39 - Assessment Variables:

Field Name

Description

Field Values

Variable Summary